A story by Carol a DID Survivor
My name is Carol and 6 years ago I was diagnosed with Dissociative Identity Disorder, following a number of mis-diagnoses.
The aim of this blog is to raise awareness of Dissociative Identity Disorder. I will also be blogging about mental health and discussing the reasons why I have D.I.D.
I live near Chester in the UK, and have 3 children, despite my past trauma and the challenges of living with D.I.D, I believe today I am a survivor and no longer a victim.
I aim to blog a couple of times a week, and I am a regular presence on Twitter you can follow me @DIDCarol
“Living life successfully – what does progress look like”
Progress comes in many guises, but long term talking therapy can make huge differences to a person’s life. During the past eighteen months I have felt myself shift and change, as I began to learn more about myself and the different parts of me. I’ve come to realise that hope is possible, and those with a dissociative disorder can live life successfully.
If someone had told me ten years ago when I was stuck on a psychiatric ward that there was hope I wouldn’t have believed them, but I can honestly say that with the right help and support things can work out okay. I have now had 3 1/2 years of therapy with my psychologist during which time he has helped empower me to rebuild my life and find the real me.
As many of you who follow my blog regularly will know my initial funding was for 3 years, yet last year my psychologist and myself decided that there was still work to be done and so a further funding request; supported by my local mental health trust, was submitted to my Clinical commissioning group for an additional year, thankfully they agreed and hence I have benefited from this additional time.
Now in the last few months of my therapy, I’m moving forwards and rebuilding my once shattered life, I have learnt to understand that I have the tool kit within me to live life successfully.
I have learnt to say no to external pressures, placing myself at the forefront of decisions and taking into account my needs. I established the level of self care I need to ensure all of me is content, I ensure I take time out to reflect, to talk internally, to meet my needs and that includes the needs of all the differing parts of me. Internal dialogue has been key to this and I’ve developed an awareness of my parts, enabling me to be more responsive to my needs, to be aware of triggers and how to respond to them effectively. Building a rapport with the various parts of me has enabled us to work together, to become more integrated and more as we really are one human being with various configurations of self, who just happens to have a dissociative disorder.
I’ve learnt to understand why I react the way I do to certain things, to accept emotions and process these feelings rather than run a mile from them, which was my previous default setting, I feel as if I’ve rewired myself internally, my negativity being replaced by an open minded ability to be more positive. I’ve eradicated negative destructive thinking, conditions imposed upon me by my past and learnt to see them for what they are….lies and bullying. So I no longer view myself as worthless, instead accepting this was a value placed upon me by bullying abusers. I now accept I can make decisions, no longer thinking I am useless and at the mercy of others – as my abusers told me. The previous desire to be ‘perfect’ has long gone as I now see that this is both unattainable and draining, a construct forced upon me by my female biological parent who told me I was never good enough to be loved. Instead I now accept that being ‘good enough’ is okay, that I don’t have to prove myself to anyone. My valuing system has gone from being very external to an internal one, where my views about me matter most, not the demands or judgements of others. I’ve learnt that I don’t have to please others, or conform, I can quite simply be myself.
All of these changes I now accept as progress, as learning how to live with DID has had a dramatic impact upon my life, it’s changed how I view myself and the world, but it’s also enabled me to stay up front and not lose time. The best way to explain this is as if I’m at a bus queue, me first and the parts in the line behind me, where previously they would jump in front and I’d lose time, now instead we are more in tune, we talk, we take account of our needs and as a result they don’t jump ahead taking over and I don’t lose time. I haven’t eradicated the parts of me, far from it, instead I’ve learnt to embrace them, accept them and take them into myself. I view myself as a team of parts, who all work together so we can live life with DID, rather than letting the dissociation control us.
None of this progress would have been possible without the right support and talking therapy is integral to this growth, but I am also aware of how much effort I have put into this journey too.
I attend each session ready to learn and to grow, ready to take on board what is being said, to undertake the homework set and acknowledge that I won’t learn or grow if I don’t put the effort in. Quite simply therapy is a collaboration between a therapist and a client, one offering the other the compassion, empathy and understanding that allows growth to occur and the other bringing an openness to trust and a desire to grow. It’s a process that requires both parties to be in tune with each other and to be willing to work hard. I’ve realised how vital the therapeutic relationship is in this process there needs to be respect and acceptance and a level of equality between both parties.
At my first session my psychologist told me that he had no magic wand and that I would see him for one hour a week and the other 167 hours were down to me, he emphasised that I needed to be ready to work hard. At the time I really thought why is he challenging me, I want to get better doesn’t he realise this, but looking back I see his words are so true. There were times on my journey preceding this therapy when I had given up hope, when I expected a magic wand from a medical professional, when I really didn’t understand that recovery comes not from a doctor or a pill, but from within yourself. I had become entrenched in a battle with medical professionals seeing them as someone to fear and dread, not accept them as someone who wanted to help me. I know this was because of how I was treated along the way by misguided and misinformed professionals who sadly didn’t see me as a person, the medicalised model has a lot to answer for. Yet I soon realised my psychologist treated me as an equal, he respected me and was genuinely interested in my views, my thoughts.
I have no doubt recovery wouldn’t have happened without my psychologist, but no matter how good he is, recovery wouldn’t have happened without me the client being open to learn, to grow and put in the effort. At times on the journey it’s been painful, I’ve doubted what he has said, but I’ve stuck with it trusting that he knows what he’s doing. Internal dialogue is such a case in point and yet I worked at it, likewise I jumped into the sea and paddled because he told me to go have some fun, I ventured into the kitchen and worked at collaboration because he gave me the tools to do so without dissociating. I’ve trusted his judgement and learnt to trust myself along the way, I’ve trusted enough to share my deepest pain, to cry and to grieve for my past. I’ve trusted enough to stop blaming myself for the abuse and instead process the anger, and acknowledge it’s my abusers I’m allowed to be angry with. I’ve learnt a myriad of emotions and how wonderful these emotions really are, so instead of running from them I can now embrace them.
It’s been a rollercoaster of a journey and it’s not at the end yet, I have six months to go during which time I’ve no doubt I will grow even more. But right now I can safely say hope is possible, no matter how dark it gets, and everyone can with the right help and support learn to live life successfully with DID.
Carol is a survivor and like all survivors, we like to give permission to use our words. Please contact Carol at diddispatches for how she prefers her words to be used.
Thank you, Carol, for allowing us the opportunity to peer into your life and see the progress you are making as you live with DID. I pray your continued healing and celebration of your precious life!